1905 Movie Network News Recently, Colin Farrell spoke to "People" and talked for the first time about the life of his son James suffering from the rare neurogenetic disease-Angelman syndrome (Angelman syndrome). Farrell hopes to use his own experience to inspire parents and children facing similar situations. At the same time, he also announced that he is establishing the "Colin Farrell Charitable Foundation" to provide help for young adults and families with intellectual disabilities.
James is the child of Colin Farrell and his ex-girlfriend Kim Bordenave. Farrell recalled that James was very quiet as a baby, and at first he thought he was lucky to have a calm, well-behaved child who didn't keep him awake at night. But later he discovered that James couldn't do some things, and then he realized that there might be something wrong with his body. James was diagnosed with cerebral palsy by a doctor when he was 1 and a half years old. When James was 2 and a half years old, another doctor pointed out that he might have Angelman syndrome because James would suddenly burst into laughter and always raise his arms. This was later confirmed by genetic testing.
Children suffering from Angelman syndrome (Angelman syndrome) lack language skills, are hyperactive and have intellectual disabilities. Because he always has a smile on his face, the disease was also called "Happy Puppet Syndrome." At that time, Farrell asked the doctor, what is the life expectancy of the child and what pain will it cause? The doctor said the life expectancy is "the same as you and me" and the most painful thing is that there will be epilepsy.
Colin Farrell has two sons. He said that he loves them very much every day. "I have two wonderful young people." However, the three of them will occasionally have friction, anger and quarrels. At this time, they also Problems will be pointed out and explained clearly. He also said that James worked very, very hard to live a good life.
In September this year, when James turns 21 and becomes an adult, he will lose the social security and benefits provided by the state for children with special diseases. "Once your children reach the age of 21, they will be on their own. All safety measures, Special education programs have disappeared, so what is left is a young person who should be integrated into our modern society, but who is often left behind."
In response, Farrell said that he had been wanting to do something for many years. To help families facing similar situations and children with special needs find a group and environment in which they can integrate and get the support they need in all aspects of life.
Colin Farrell said: "What if something happens to James' mother or me, if he is sent to some kind of institutional or nursing home when he is 30 or 40 years old, there will be no one there who can take care of him. Taking him out, taking him to eat...there are very few suitable places. I want this situation to change." He said sincerely: "I hope the world treats James with kindness and respect. I dream that he can. Always living a life of connection with others, a sense of belonging, security, and a fulfilling, meaningful life.”
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