"Porcelain Doll"'s 21 Years
Born with brittle bones, she fractured 26 times in 16 years, struggled to study, and took care of her mother with cancer alone after her father passed away... Difficulties never knocked her down; now, at the age of 31, she is going through some Happy things: I have just been married and a little life is about to be born.
From the first time I met Yao Shuling in 2003, who had just entered elementary school, to the time I noticed the wedding photos she shared in the circle of friends in 2024, the reporter witnessed the hot 21 years of this "glass girl"... Written by
/ Photography by Peninsula All Media Chief Reporter Gao Fang / Peninsula All Media Reporter He Yi
On February 17, the eighth day of the first lunar month, the morning light of the New Year shone on the earth. In a hotel on Jiaobei Street, Jiaozhou City, Qingdao, as the door of the banquet hall slowly opened Opening it, a newlywed couple walked happily and sweetly onto the glittering stage with the blessings of their relatives and friends, and issued their wedding vows:
"I want to say to Mr. Sun, who is about to spend the rest of my life with me, that you have really good taste!" "The bride Yao Shuling, 31 years old and only 1.38 meters tall, said.
“When I said I wanted to share the rest of my life with you, I wasn’t kidding! From now on, whether it’s barbecue or hot pot, ice cream or chocolate, you have to share a bite with me... We are like two fitting puzzle pieces, I I am willing to laugh and take risks with you, so that the unknown future will be full of love and humor..." Sun Xiwu, the 26-year-old groom who is 1.83 meters tall, stared at the bride dotingly and responded.
On February 17, Yao Shuling and Sun Xiwu held a wedding ceremony in a hotel in Jiaozhou, Qingdao. The two held hands and started a new life.
On February 22, when talking about these small moments from the wedding again, Yao Shuling’s face was flushed and her eyes were red. Smiling like a crescent moon, "When discussing the wedding style with the wedding planner, I mentioned it: We don't want to be sensational, I prefer something joyful and humorous."
This girl who loves to laugh is experiencing some of the happiest things in her life. , got married, will be a mother, and will welcome the birth of a "baby dragon" in the golden autumn. But anyone who knows Yao Shuling knows that her happiness is hard-won. She suffers from brittle bone disease and is also known as the "Porcelain Doll" and "Glass Girl."
At the wedding ceremony of Yao Shuling and Sun Xiwu, the parents took the stage to send blessings
"Pregnancy is a big challenge for me. As the fetus grows, the pressure on my heart and lungs will become greater and greater, but the child will For us, it is fate. Now that fate has arrived, we must cherish it." Yao Shuling said with a smile, as if those past pains and unknown worries did not exist at all.
My tomorrow will be at least better than yesterday
For "Glass Girl" Yao Shuling, fractures are a common occurrence. She was a 4-month-old baby when she first fractured her bone.
As long as she can remember, she has heard her parents describe the scene many times: "Children all like to kick their legs. One time I suddenly stopped kicking and cried loudly. When my parents touched my legs, I cried even harder. . They hurriedly took me to the hospital. The doctor said that the child's left thigh was fractured and he had to be hospitalized."
At that time, no one in the family thought much about it. After staying in the hospital for a month and just returning home, her mother gave Yao Shuling a bath. Yao Shuling excitedly kicked the water with her feet. After a few splashes, her right thigh bone was fractured again.
After repeated examinations in major hospitals, doctors gave a unanimous conclusion - brittle bone disease, which is a rare congenital bone disease characterized by fragile bones and prone to fractures.
After the diagnosis, her parents gave her her current name - Yao Shuling, hoping that her legs would be as strong as a tree trunk and her life would be as strong as a tree.
"Broken bones were my nightmare when I was a child. I often dreamed about the scene of broken bones. When I heard the sound of the bones in my body snapping, I woke up in a cold sweat." Ordinary people can't bear the possibility of broken bones. Pain is a recurring torture that Yao Shuling has had to face since she was a child.
In 2003, Yao Shuling, who was in the first grade of primary school, was carried by her teacher.
“Once I have a fracture, the normal treatment in the hospital is very painful, because my bones heal very quickly. The most impressive thing is that after the fracture, I need to set the bones, which means breaking them apart.” It was really painful to open the newly healed bones and align them again." When Yao Shuling reached the age of 16, she had already experienced 26 fractures. Her legs became longer and more curved, forming an S-shape, and she could not stand even while standing. Not straight anymore.
In 2010, after many inquiries, the parents learned that Shandong Provincial Hospital could perform this kind of treatment and surgery, so they took 17-year-old Yao Shuling to Jinan and had two surgeries in two years. The intramedullary nail is inserted into the bone and the bone is pierced from beginning to end, a bit like a mutton kebab. If an accident such as a fall occurs, it can play a protective role and reduce the number of fractures."
Since Yao Shuling had missed the best time for treatment, only one right leg was fixed with an intramedullary nail. What follows is a long recovery period. She secretly set a goal for herself: throw away the crutch!
Yao Shuling has just finished surgery and has been in bed for a long time to recuperate. Yao Shuling's leg muscles are atrophied, so she must practice standing first, "but not for too long, otherwise her legs will become swollen." Wait until she can stand still before entering the next level. Learning to walk again with crutches.
"This is a very hard job. All the weight of the body is pressed near the shoulders. After walking for a long time, the armpits are worn out." In Yao Shuling's memory, this is a period of wearing out and scabbing under the armpits. It was a repeated process of healing and wearing out. "At that time, my physical strength was not good. I couldn't walk for more than a few minutes and I was sweating."
Later, the double crutches became single crutches, and when the last crutch was thrown away, it was about for seven years.
The most difficult thing is not the pain of the recovery period, but whether she can see the light in the darkness. What supports Yao Shuling is a belief: "I don't know if tomorrow will be better, but at least it will be better than yesterday."
She Walking is very difficult but very happy
In order to avoid the injury of fractures, Yao Shuling grew up on the back of her parents before the age of 9. She rarely went to the ground and rarely went out. She acquired sporadic knowledge in daily life. , "I watch some children's channels on TV and learn it by myself. Pinyin is taught by my father. If you learn Pinyin, you can read." Drawing is also one of her hobbies, which is used to kill the long hours of loneliness.
In 2002, Yao Shuling was 9 years old. Her parents decided to send her to school when she was about to miss the lower age limit for entering primary school. "It was the first time I saw so many children. I was so happy."
From then on, every day, Her mother carried Yao Shuling to the entrance of the No. 1 Primary School on Luoyang Road, Qingdao, and the teacher carried her into the classroom.
In May 2004, Yao Shuling was in the second grade of elementary school. The teacher pushed her to the underwater world to play
"My mother had to run to school three or four times a day, taking me to school in the morning, and coming to school once at noon to carry me to the toilet. In between. When I am thirsty, I will dip my lips in water and drink as little water as possible. In the afternoon, my mother will pick me up from school." Yao Shuling saw that behind the world, her mother accompanied her regardless of rain or shine.
When she was 10 years old, her parents customized a pair of small crutches for Yao Shuling. “It was very difficult to learn to walk with crutches for the first time. I practiced for a full year.” With the crutches, Yao Shuling slowly began to walk on her own. walk.
In the autumn of 2008, Yao Shuling entered junior high school in Qingdao No. 16 Middle School, and her family also moved into a low-rent house. The distance from home to school is at most 1 kilometer. According to a normal person's pace, this journey only takes 10 minutes. But Yao Shuling, who uses crutches, spends half an hour each time. When her father or mother takes her to school, they have to hold on to her clothes for fear that she will fall.
When she was a student, Yao Shuling, who had a cheerful personality, made many good friends, and there were always many classmates and teachers who cared about her. On the way to school, her classmates would help her carry her schoolbag and escort her all the way. After arriving at school, they would all help her with fetching water and food.
Time flies, and in the blink of an eye, it is 2013. Yao Shuling, who is studying animation at Qingdao Business School, is 20 years old. She begins to make plans for her future: "I hope to use the brush in my hand to realize my college dream."
By chance, Yao Shuling met Lu Jun, the leader of the art teaching and research group and senior teacher of Qingdao No. 6 Middle School, and wanted to learn painting from him.
On December 1, 2013, Yao Shuling and her family took a group photo at home
"When I first saw this girl, I was a little worried. She looked too weak. The art exam is very intense and tests people's perseverance. She can persist. Come down?" Lu Jun hesitated, but after Yao Shuling's repeated pleas, he accepted this special student.
"After getting in touch with her for a long time, I found that she has an optimistic personality and a little sense of humor. You will be infected by her emotions and unconsciously feel that there is nothing special about this girl compared with other children." Lu Jun gradually said Touched by this strong-hearted girl, after learning that neither of Yao Shuling's parents had regular jobs, he took the initiative to apply to the school for a tuition exemption for her.
During the two years of studying painting with Lu Jun, as the art exam approached, Yao Shuling painted with increasing intensity. "Starting at 8 a.m. and ending at 8 or 9 p.m., I practiced painting and sketching for about 10 hours every day. Many children felt bitter and tired, but Shuling never complained." Lu Jun recalled.
At that time, Yao Shuling had a stubborn idea, "I just want to make money early to support the family and reduce some of the burden on the family."
Every time she saw her mother leaving early and coming home late, working hard all day doing housework to earn a meager income, her father's health also deteriorated. The red light was on, and she felt guilty and anxious. "I hope to be admitted to a university and study animation and design majors, because in practice, such majors do not have to move around and the work can be completed in front of a computer."
The lines drawn by the brush are the track Yao Shuling is striving towards the future. "I am not qualified to waste time. When I get tired, I curl up next to the bookcase in the corner of the studio and take a nap, and continue painting when I get up."
Since her home is far away from the studio, she goes to school every day. After school, she needs to change to a bus, which takes about 4 hours. When Yao Shuling gets home at night, it will be after 10 o'clock.
On November 5, 2013, Yao Shuling walked out of the studio at night. The only way Yao Shuling had to pass was the large staircase with very high steps. She declined the help of her classmates to help her carry the drawing board, and walked up the stairs firmly.
Lu Jun still remembers a scene , "Outside the door of my studio is a large uphill slope several hundred meters long. She climbs that staircase every night to reach the road above and take the bus. Every time she climbs the stairs, I secretly follow behind and watch. She was afraid that she would accidentally fall."
"She kept climbing step by step on crutches, swaying from side to side, and the picture folder on her back was longer than half of her body. She walked very hard and very happily. ." Yao Shuling's back image was firmly imprinted in Lu Jun's mind like a silhouette. Speaking of this scene, he sighed deeply, "They say this girl is a 'glass girl', but she is really strong."
From 2013 From 2014 to 2014, Lu Jun supported Yao Shuling for free for two years, coaching her to pass the art exam and enter the Shanghai Publishing and Printing College. "On the day when I was studying and filling in my application, her mother accompanied Shuling to the studio. The way to express her gratitude was very simple - while we were studying and applying, my mother silently cleaned my studio."
September 14, 2014, Shanghai, Yao Shuling and her mother took a group photo in front of the university
In fact, when Yao Shuling achieved good results in the art exam, Lu Jun once suggested that she apply for a local university in Qingdao, "but she refused very firmly. She said, 'I have to Go out and prove that I can do it.'"
"Glass Girl" became the mainstay
"Three years of college not only helped Yao Shuling acquire a skill, but also broadened Yao Shuling's horizons. When her graduation internship in 2017 was approaching, she was looking forward to finding a job in Shanghai. One day, she suddenly received a call from her father: "Daughter, I miss you.Can you come back and see me..."
When Yao Shuling returned to Qingdao, she was shocked. Her father, who had just undergone surgery, was lying weakly on the hospital bed. Before that, her parents had always concealed the fact that she was seriously ill and had surgery. .
On September 13, 2014, Yao Shuling, who was about to leave, had dinner with her parents at home. Her parents specially made dumplings for her to eat.
Looking at her aging parents and her younger sister who was still in junior high school, at that moment, Yao Shuling decided to return to Qingdao as soon as she graduated. Work. But the employment path after returning to youth was not smooth. She only applied for some jobs such as answering customer service calls.
The house leaked and it rained continuously, and fate hit the family one after another. In 2022, the 56-year-old My mother was diagnosed with breast cancer.
"My father is in poor health, my sister is still in school, and my mother has to be hospitalized every 21 days for chemotherapy, and I am always in bed with her in the hospital. "Looking at the haggard face of her eldest daughter, her mother was so distressed that she shed tears. Yao Shuling, who was optimistic, comforted her mother, "Fortunately, I am small, and the hospital bed is just the right size for me. "
Every time her mother finishes chemotherapy, Yao Shuling will learn to make various soups at home to increase her nutrition. "I have heard from many patients, such as turtle soup, oxtail soup, chicken soup, pig's trotters soup, etc., and also boil five red soups in the morning. Soup, anyway, come in a different way. "
Not long after recovering from breast cancer treatment, my mother was diagnosed with thyroid cancer. "My mother and I spent the entire year of 2022 in the hospital. "
On September 13, 2014, Yao Shuling took a bus to report to the university in Shanghai. The father and daughter said goodbye on and off the bus.
At the beginning of last year, when Yao Shuling's mother was hospitalized, her 65-year-old father fell ill again. The burden of the deputy family was completely lifted.
Her father lived in a hospital in the west end of the city, and her mother lived in a hospital in the east end of the city. This was difficult for Yao Shuling, "During that time, I wished I could grow a baby under my feet. Hot Wheels is coming. "
Every morning at around 4 o'clock in the morning, Yao Shuling gets up on time to cook. "After cooking, I first go to the hospital in the west to deliver food to my father, and then rush to the hospital in the east to deliver food to my mother. Then I returned to the hospital where my father lived, accompanied him for various examinations, and wrote down the doctor's orders one by one. After 4 o'clock in the afternoon, I returned to the hospital where my mother lived and had a meal to fill my stomach. "
In March of the same year, my father's condition suddenly worsened and he fell into a coma due to intracranial infection. Before coma, his father took Yao Shuling's hand and left his last words: "Take care of mom, I can't worry about you. "A few days later, her father passed away with concern and reluctance.
While taking care of her father's funeral, she took care of her mother who was in the hospital and her sister who was in college. Fate did not give Yao Shuling a chance to breathe and think, "At that time I couldn't care less about the collapse and had no energy to care about my emotions. I was like a spinning top, just trying to take care of my family. "
On September 13, 2014, the bus was about to start. Yao Shuling's father and sister waved goodbye to Yao Shuling.
On September 14, 2014, in Shanghai, Yao Shuling's mother sent her daughter to school and held her hand all the way.
Dad passed away , her mother caught a cold due to grief and lack of rest, and she didn't eat or drink for several days. This is a taboo for patients during chemotherapy. Yao Shuling hurriedly asked relatives and friends to enlighten her mother, crying on the phone: "Help me Please advise my mother, my father is gone, but I can no longer live without my mother..."
But when she returned to her mother, Yao Shuling tried to remain calm, hoping to deal with the mess properly, "I only have one idea, Dad Memorial matters can allow the mother to worry less or not worry. As long as the test indicators for the mother's hospitalization are up to standard, it will be fine. "
A girl who loves to laugh will not have bad luck.
People say: When God closes a door for you, he will definitely open a window for you. The ruthless fate finally made compensation for Yao Shuling.
This is okay Back in 2022, in order to better take care of her parents, Yao Shuling took time off to learn to drive while accompanying her mother for medical treatment. When she was taking the third subject, she met the other half of her life - Sun Xiwu, a young man from Jiaozhou.
The two of them are full of love together
Sun Xiwu is 5 years younger than Yao Shuling and has a hand disability. He and Yao Shuling both took the C5 driver's license exam. "When we were taking the exam for subject three, we were just three young people. After the exam, we had a dinner together to celebrate and left each other WeChat messages." After that, the two young people communicated through WeChat and became friends.
When Yao Shuling’s father fell ill in 2023, she needed help sending her to the hospital. Yao Shuling called Sun Xiwu in desperation, and Sun Xiwu rushed to Yao Shuling’s house without saying a word. "During the examination at the hospital that day, he carried my father upstairs and downstairs until about 4 p.m., and then left after all the examinations were completed."
Afterward, Yao Shuling asked Sun Xiwu: "Is it so easy for you to ask for leave from work? "
" Sun Xiwu said with a smile: "The leader disagrees. I said, I have to take leave even if I resign. I have important things at home."
The road was slippery in the snow, Sun Xiwu held Yao Shuling's hand tightly and put it into his pocket
At that moment , Yao Shuling was moved. The two young hearts have grown closer and closer since then.
"Once I was in the hospital with my mother and I posted on WeChat that I wanted to eat hot pot and barbecue. After my mother was discharged from the hospital, he actually took me to eat these. He would remember everything I said." Yao Shuling said happily. Said, "My husband often says that since I married into his family, my family status is higher than his. My parents-in-law are very good to me. I like the sauerkraut dumplings made by my mother-in-law the most. Every time before I go home, my mother-in-law will ask me what I want to eat. For example, if I say I want to eat strawberries, these things will appear on the table."
In June 2023, Yao Shuling joined the public welfare post of Kangju Road Community. "When I was recruiting and registering, Secretary Li of the community called me and asked me to sign up quickly. Try it." So far, Yao Shuling has a stable job, and her working place is downstairs of her home. This is a great convenience for her who has difficulty walking.
Yao Shuling works daily in the community
There are 7,700 residents in the Kangju Road community. Yao Shuling needs to check the various demands submitted by residents on the community platform every day, such as raising dogs to disturb people, leaking houses, etc., and then contact the urban management, property management, building directors, etc. The unit or person in charge solves problems for the residents. “Sometimes, more than 200 problems have to be solved in a month.”
Secretary Li, who has worked in the community for more than ten years, said: “Shu Ling is a talented and caring girl. When she was a child, she drew a pen painting of Badaguan scenery. The community recommended her to participate in the city exhibition, and auctioned more than 10,000 yuan for charity activities for disabled children." In the eyes of residents and colleagues, Yao Shuling is a soft-spoken person. , a girl who loves to laugh. Although she has experienced difficulties in life, she still maintains an optimistic attitude towards life.
"This is due to the love and care of my parents. My parents have never been embarrassed to take me out because of my health. When I walk outside, there will definitely be strange eyes around me. They always encourage me: I am not tall enough, but It doesn't mean that we are worse than others. Some people may look at you because they think you are good-looking, so why don't they look at you more? Whether you want to learn painting or want to study in Shanghai, your parents have never blocked these decisions."
Yao Shuling and Sun Xiwu prepare lunch in the kitchen at home
Now that good luck favors her, Yao Shuling is newly married and pregnant, and her life is getting better step by step.
"Recently, Jia Ling proved her perseverance and will to realize her dreams in the movie "Hot and Spicy". Shuling also has this admirable strength. I hope she will get better and better, like other girls." , experience all the beautiful things in life." After hearing about Yao Shuling's current situation, teacher Lu Jun said sincerely his blessing.
Reporter’s Notes:
Let happiness bloom in the ordinary
Peninsula All-Media Reporter He Yi
Sun Xiwu always takes care of Yao Shuling when he takes her out, and always takes good care of her and takes care of her
When I see Yao Shuling again, her face is still full of kindness. Smile, although I haven't seen her for ten years, I saw her from a distance. Her appearance has not changed much, but the crutch in her hand is missing, and her walking is much easier than before.Now, she can drive independently and take her family out with her. A tall and handsome boy is beside her, holding her hand tightly and covering it in his down jacket pocket.
On February 17, Yao Shuling, the "glass girl" who has been reported many times by Peninsula Metropolis Daily, and her lover Sun Xiwu walked into the marriage hall hand in hand. The reporter pressed the camera shutter again to record their sweet and warm moment.
Yao Shuling has suffered from brittle bones since she was a child. She is only 138cm tall. She has to use crutches when traveling since she was a child. If she is not careful, she can easily suffer fractures. She is called a "porcelain doll". The reporter first met her in 2004 at the No. 1 Primary School on Luoyang Road, Qingdao, when she was in first grade. Due to her young age and unable to walk on her legs, her parents carried her to the school gate, and then her homeroom teacher carried her in. This carried her for 6 years.
In 2013, the reporter received a call from Lu Jun, an art teacher at Qingdao No. 6 Middle School. He wanted the reporter to report on one of his students because he was moved by many things about this student, such as his perseverance and hard-working spirit of learning. Prompting him to do something. So, the reporter walked into the studio and met Yao Shuling again. At that time, she was already 20 years old and in her senior year of high school, sprinting to realize her college dream. The innocent smile on her face still remained.
In November 2013, Yao Shuling was in the studio, learning to paint with art teacher Lu Jun.
During the art exam training, Yao Shuling had to pass a large staircase near Jiangsu Road on her way home every day. The reporter looked at her from behind and looked thin. Her back, leaning on a cane and carrying a drawing board, walked up the steps step by step. She just felt very tall. Such a self-improving girl often completes many things independently and rarely asks for help from others. Because she always believes that the road to chasing dreams is tortuous after all, and faith and perseverance determine personal success or failure, and one must be fearless in all difficulties!
During her college years, Yao Shuling also declined the helping hands often extended by her school and classmates. She believed that she could not always ask others to help her with her affairs, so she could only complete the difficulties she faced independently. In this way, when she stepped out of campus and faced the society Only then can you cope with it freely. Today, she devotes herself to community service work and repays the society with her own modest efforts.
Yao Shuling and Sun Xiwu ate with the elderly at home
Walking into Yao Shuling's home again, the house decoration is very simple. Sun Xiwu does not let Yao Shuling interfere with cooking and housework, and almost spoils her like a princess. Talking about their acquaintance and love, Yao Shuling's face overflowed with a sweet smile. "I am very grateful to my father-in-law and mother-in-law for raising a kind, gentle, responsible man and entrusting me with such an outstanding man. I am honored to be your daughter-in-law."Yao Shuling said that her future is just like what she said in her wedding oath, and she hopes to spend the rest of her life with her lover hand in hand. "Let love settle in the years, and let happiness bloom in the ordinary! "
On October 29, 2013, Yao Shuling was in the studio, exchanging homework with classmates.
On November 2, 2013, Yao Shuling was practicing painting in the studio.
On September 14, 2013, Shanghai, Yao Shuling began to adapt to university life alone.
October 2013 , Yao Shuling hangs up her works in the studio and waits for the teacher to read and inspect them. On November 2, 2013, Yao Shuling watched a video with her classmates during lunch break in the studio. On February 9, 2014, Yao Shuling took a nap on the way to Jinan. Recently, Yao Shuling took a nap on the way to Jinan. She was a little tired after taking exams many times.
On December 1, 2013, Yao Shuling was cooking at home.
On February 10, 2014, Jinan, the outdoor temperature was below zero. Yao Shuling came to the examination room and waited to enter.
On February 9, 2014, Jinan. , Yao Shuling is in the hotel room, checking the items that need to be tested tomorrow
On February 9, 2014, Yao Shuling, who arrived in Jinan, was sorting out the recent art examination certificates
On January 12, 2014, Yao Shuling took the art examination in Qingdao
February 10, 2014 On the same day in Jinan, it was still dark. Yao Shuling carried a cane and pulled a drawing box to the art examination site. On February 10, 2014, Yao Shuling took the art examination in Jinan. On September 13, 2014, in the night, Yao Shuling’s parents, My sister came to the bus station to see her off
On the night of September 13, 2014, Yao Shuling took a bus with her mother to register at the university in Shanghai.
September 14, 2014, Shanghai. Yao Shuling and her mother were in the university dormitory.
September 14, 2014, Shanghai. , Yao Shuling is in the university classroom, looking forward to the next three years of life
September 14, 2014, Shanghai, Yao Shuling and her mother came to the university classroom, both strange and happy, looking forward to the future university life
September 14, 2014, In Shanghai, Yao Shuling and her mother came to the university to register and were very happy to start their university life.
On September 14, 2014, in Shanghai, Yao Shuling greeted her classmates in the dormitory.
On September 14, 2014, in Shanghai, Yao Shuling and her mother were at the university. In the cafeteria, preparing for meals
On September 14, 2014, in Shanghai, Yao Shuling tried her best to complete various procedures by herself during the registration period at the university
At noon in the school, Yao Shuling curled up in the bookcase to take a lunch break
