Cai Lei
A ALS fighter
He was the vice president of finance of JD.com
He is currently the chairman of Beijing Aiscon Medical Technology
Co., Ltd.
and the president of the "Internet + Finance and Taxation" Alliance
Recently, Cai Lei Talking about his recent physical condition, he said that needed someone to support him from getting up to the bathroom for a distance of 5 meters, and his swallowing and sputum coughing conditions had also worsened. Now his breathing has begun to fail, and he must wear a ventilator all night, and his body muscles He was in an overall decline and said bluntly that he was "very close to death."
’s wife Duan Rui said in a previous interview that she was prepared for the worst.
In the fall of 2019, 41-year-old Cai Lei was diagnosed with ALS. At that time, in addition to being responsible for the relevant management work of JD.com, he also led four internal startup companies. "My child was just born at that time and was less than one year old." Cai Lei said in a public speech.
The incidence rate of this rare disease is about 1.6 per 100,000. Today, with the rapid advancement of biomedical technology, the cure rate is still 0. The vast majority of patients will reach the end of their lives within 2 to 5 years. But Cai Lei is not content with this. He is used to challenges and hard work. Two months later, he decided to use himself as a weapon to fight ALS to the end.
Developing drugs to increase hope for future patients
Cai Lei used all his contacts and resources and vowed to "either die or get rid of this disease."
This is his last battle: building a database, seeking funding and scientist support, promoting drug pipeline research and development, and providing support for tens of thousands of ALS patients; he tried live streaming, wrote an autobiography, and last year typed the final Bullet: Unite more than 1,000 patients to donate brain tissue and spinal cord tissue for medical research.
Cai Lei is working
To "fight" ALS, Cai Lei formed a scientific research team to develop drugs and worked more than 16 hours a day. "Although I am already a disabled person, in the face of death, I can still do valuable things for society." In the new year, Cai Lei said that he should believe in the "power of belief" and hoped that the "Ice Breaking" cause would make new progress.
The cover of Cai Lei's new book "Believe" reads: "Even if you are defeated, you will never surrender."
What is ALS?
ALS, also known as amyotrophic lateral sclerosis or motor neuron disease, is a progressive muscle weakness and atrophy caused by damage to upper and lower motor neurons. Experts point out that the cause of the disease is still unclear. About 20% of the cases may be related to heredity and genetic defects, and some environmental factors such as heavy metal poisoning may also cause damage to motor neurons.
There is another rare disease with symptoms
similar to ALS
It is zombie syndrome
Because it is very rare and difficult to diagnose early, many people confuse zombie syndrome with ALS. There is a clear difference between the two. : ALS is motor neuron disease and is a neurodegenerative disease, while stiff-person syndrome is related to genetics, viral infection and autoimmunity and is an autoimmune disease.
According to previous reports, the famous singer Celine Dion, the singer of the famous theme song "My Heart Will Go On" from the movie "Titanic", is suffering from the rare disease "Zombie Man Syndrome", which makes it difficult for her to sing smoothly. Unable to control muscles.
Cai Lei's story was widely spread
Moved, netizens hope that
he can create miracles
continue to bravely fight against fate
Xinmin Evening News (xmwb1929) comprehensive Hongguan News, CCTV News, Jiupai News, Jiemian News, Netizen comments
Editor: Shi Yu
