For legendary queen Celine Dion, not being able to sing is more painful than killing her.
Since she announced in 2022 that she was suffering from the rare disease "stiff person syndrome", it has become an unresolved unknown as to when she can return to the stage.
Her life has become a huge question mark:
She doesn’t know when her illness will get better? I wonder if I can still sing? People who listen to the wind are like rain are curious about whether she will die?
Faced with all speculations and doubts, Celine made a documentary about her fight against the disease "i am: celine dion" .
This is the analysis of her self-exposed scars, her cry of unwillingness to surrender to fate, and her sincere confession to her fans:
"If I can't run away, I will go to you. If I can't even walk, then I will crawl through it. "
Celine's illness is much more serious than what she said calmly: "It's just so painful that I can't get out of bed."
In the documentary, the high-definition camera clearly captured her face with facial features distorted by the pain.
During the more than ten minutes of convulsions, she was unable to move, couldn't speak a word, and shed tears in pain. The medical team held a stopwatch to pay close attention to her reaction, because her life might be in danger at any time.
Fortunately, she survived every time.
She has experienced this kind of torture countless times, will have attacks regardless of time or occasion..
Celine couldn't even imagine what a horrible nightmare it would be if she collapsed on the concert stage one day. She could bear the pain of the disease, but she couldn't accept the fact that she couldn't sing..
As early as 2008, she had a premonition when the symptoms appeared at the earliest.
One day when she woke up in the morning, her voice was very high-pitched when she spoke. Being sensitive, she immediately panicked -
The voice when she got up should have been deep and hoarse, and she needed to open her voice, but now her voice was an octave higher.
As a top singer, she cherishes her singing voice as much as her life. She panicked for a moment, fearing that she would never be able to sing the beautiful voice again.
Whatever she is afraid of will come, but Celine is still trapped by zombie syndrome.
This disease is even rarer than ALS, with an incidence rate of one in a million. Once it attacks, the whole body becomes immobile and suffers from persistent stiffness or spasm, making life worse than death. The impact of
on Celine is that the chest muscles become stiff, squeezing the lungs and vocal cords, causing her to be unable to control high and low notes freely, which is what makes her feel desperate.
's symptoms were very mild at first. When her singing had flaws, she could use rhinitis or ear infections as excuses. When
had to, she turned the microphone to the fans and asked them to sing, or tested the microphone and pretended that there was something wrong with the equipment, so that she could have buffer time when she was uncomfortable.
The worst thing is to interrupt the performance. At the moment when he was about to collapse, he said to change clothes and never returned to the stage.
A few years ago, Celine Dion lost weight and became a bamboo pole. Many people had already speculated that she had a serious disease, but she denied it adamantly.
She is afraid that after being treated as a patient, the audience will not be able to purely appreciate her singing. Even if she sings poorly, they will only sympathize with her. "She is so sick, and she can sing very well."
Therefore, she would rather lie and bear the pain alone, but also give a perfect singing to her fans.
She told this lie for nearly 20 years . It wasn't until she couldn't stand it any longer and had to cancel one concert after another that she decided to reveal the secret.
When Celine encounters difficulties, she always fights back hard, but her inability to sing has become her fatal weakness.
She was born as the 14th child in a large family with 13 brothers and sisters.
She was poor when she was a child, she was so poor that all she had left was a God-given voice, which allowed her to sing an invincible future .
She sang on stage at the age of 5, made her debut at the age of 13, became famous in France at the age of 15, and dominated Europe at the age of 19.
At the age of 22, having only studied English for 2 years, she broke into the English pop music scene with great momentum, sweeping the world and winning various music awards.
When "Titanic" was released in 1997, her performance of "My Heart Will Go On" became popular all over the world. Grammys were as easy as picking up, and Oscars and Golden Globes were within reach.
Music has reshaped Celine's life. She firmly believes that she was born to sing, and no one or anything can stop her from taking the stage.
Only one time, she endured the pain and retired for three years for the sake of her true love, Reni.
Reni is 26 years older than her. He is her Bole who fights alongside her and her lover who shares weal and woe.
When she first met him at the age of 12, Celine recognized this man who had an eye for pearls and was willing to sell everything for her to produce a record.
Relatives and friends objected to their age-disparity love. She overcame many obstacles before marrying her sweetheart. Not long after, she learned that Renee had throat cancer.
In 1999, which was Celine's most prosperous day, she announced that she would leave the stage temporarily to accompany her husband through the difficulties.
When Rainey's condition improved, she immediately came back. The first thing she did was to sign a five-year singing contract with Caesars Palace Hotel in Las Vegas.
This is "the biggest bet in the history of music". No singer has dared to sing in the same city for so long, but Celine actually won the bet for the first time.
In five years, 732 performances were almost sold out, creating box office revenue of nearly 400 million U.S. dollars .
But while she was writing the myth, she was also suffering from the grief of her loved ones leaving one after another.
On the day her father passed away suddenly, she was singing and performing. When she couldn't help herself, she cried like rain.
Then her beloved Renee died of illness. She lay on the coffin and gave her last kiss.
Two days later, she received the news that her brother had passed away. Her tears had dried up and she could no longer cry anymore.
What was even more uncomfortable was that the relatives she could rely on left one after another, and she also began to suffer from illness.
The only thing that supported her and gave her strength was to continue singing.
Celine said that the cheers and applause of fans are like invisible adrenaline, making her happy, excited and addicted.
As long as she stands on the stage, she is the invincible God of War.
Although Zombie Syndrome cannot be completely cured, Celine is still waiting for a miracle and challenges the disease like an unyielding warrior.
Just like at the end of the documentary, it was clear that she was hoarse in pain a minute ago, but after she recovered a little, she immediately sang loudly with a bright smile.
She never gives up, just like a rose that has been destroyed by wind, frost, rain and snow but stands proudly.
